Wednesday, February 27, 2013

Been thinking...

From what has been going on this month, I was thinking last night.  Back in December, mom and I had been talking about Obama Care  and how it could affect Timmy.  At some point, it would come that the hospital would say that we can not care for him.  They basically wouldn't be allowed to.  The main reason would be that he is handicapped.  So for him dying now is a blessing in disguise that we do not have to go through.

From what I read about Granulomar Disease, is eczema being active.  I have been having issues with mine since late summer.  I have been complaining about it, and have started thinking in the last few months, that maybe I had become allergic to tomato products.  It seems that my eczema would bother me when I ate pizza, spaghetti, chips and salsa, lasagna.  My eczema is the corners of my mouth.

Monday, February 25, 2013


    Since the last time I had a PET/CT scan, some changes were made. Like, having to eat a high protein/low carb diet.  That is hard for someone who doesn't eat that way.  I had to really watch my sugar intake.  I couldn't eat birthday cake from a friend's surprise party yesterday.  I do not like Greek yogurt.  I knew I didn't like it, but ate a container of one yesterday.  I also had to limit my movement for yesterday.

   I went upstairs to have Infusion services access my port first, went downstairs, they gave me the drug, and you are to wait an hour before you can have the scan done, so I went back upstairs to be flushed and deaccessed.  They did two different sets of scans, totaling almost an  hour in length.  I will get the results on Friday.  I came home and basically did nothing the rest of the afternoon.  I drove gma nuts by watching tv for a few hours.

Monday, February 18, 2013

I think this is scare #6

So far, February has been a rough month, and March will also be rough.  Last Friday (2/15) I had my CT scan with contrast.  I saw my oncologist this morning for the results.  As the title says, another scare that my cancer is back.  What did the scan say?  Lymph nodes a little worse and they are not easily accessible; small nodules in both lungs 2-7 mm in size and too small to be biopsied, and my spleen is 2 cm bigger. My blood word I had done on the 5th cam back good.  I found out today that I was diagnosed with granuloma disease two years ago.  Go to the following website to find out more information about granuloma disease: From reading this, I think my brother also had granuloma disease.  According to the website, it is an inherited disease, so both of my parents are carriers.

Next Monday (2/25) I will have a Pet/CT scan.  That Friday (3/1) I will be seeing a new doctor, a Cardiothoracic surgeon in the morning and see my oncologist early that afternoon.  I googled the surgeon, and from what I read, he is to be a top notch surgeon/doctor.

Depending on what the PET/CT scan says will determine the next steps.  Biopsy? Surgery?

It seems like every year, I have a scare of some kind.  I am tired of having a scare every year.  When can I go a year without scares?

      I know you know what you are doing?  You have plans to prosper me, not to harm me.  Please give me the strength to get through this.  I also what you to be glorified during this time.  Please use me in whatever way you deem.  Your will be done on Earth as it is in Heaven.  I am not happy.  This on top of Timmy's death, and the stress of the school year seems to be too much bear.


Thursday, February 14, 2013

RIP Timothy Andrew Sanyo

     Janiuary 30, 1977-February 13, 2013, is the life span for my brother.  He was admitted to the ICU this past Sunday morning.  I saw him that afternoon.  He was put on a respirator Monday to try to help clear up his lungs and to make it easier to breathe.  I was told Tuesday night that he wasn't doing good. A little before 1:30 pm yesterday, while my students were at special, I got a call, saying that Timmy was coming off the respirator and only had hours to live. I left school and went straight to the hospital.  We had a roomful of people.  We told stories about him and laughed, stories about how much of a stinker he could be.
     About 9:45 pm, he was moved out of ICU and to a regular floor.  I left a few minutes before 10 pm to come home and go to bed.  A little before 10:30 pm, the hospital called to say that Timmy had died.  I've been crying off and on since yesterday afternoon.
   My first thought was if I knew he would only live 30 more minutes that I would've stayed.  Then a few minutes later, I thought,  maybe he waited until I left to die, just to be a stinker one more time.  Like he had the last word.

This was taken on Christmas in 2010.

Timmy's funeral will be Tuesday, March 5 at Grace Baptist Church on Firestone Blvd, in Akron, OH at 11 am, and visitation at 10 am.  He will be burried next to Grandpa Sanyo.