On Monday, I stood at the desk, I was scheduled for a PET scan for today. My lung doctor scheduled this scan, not my oncologist. They had to call the Infusion Center to schedule an appointment for me to be accessed. I had an 11 am appointment this morning to be accessed.I had to be downstairs by noon fora 12:30 appointment. I am downstairs early and precede to check in. I wasn't on their schedule. The code for the diagnosis that my lung doctor used was for a scan that they don't do where I was. Phone callas were made, and I found out that my test would be rescheduled. I had to go back upstairs and be deaccessed. I wasn't too happy.
This was the third day in a row that I wasn't at school. Wednesday I saw my kidney doctor and my personal doctor. My blood work came back good, except for my magnesium which is low.
Yesterday, I had a light case of the stomach flu. It started Wednesday night.
Showing posts with label blood work. Show all posts
Showing posts with label blood work. Show all posts
Friday, February 28, 2014
Monday, February 24, 2014
Saw my Lung Doctor Today
I saw my lung doctor after school today. Turns out, I was not supposed to stop taking steroids last month. I was supposed to continue taking them until I saw him today. I told him that i never want to be on steroids again. There are other drugs that I could take if needed to. He checked my blood work that was done on Valentine's Day. My calcium is 8.8, my creantin is in the normal range. My kidney function is normal.
This Wednesday afternoon, I will be getting an ultrasound on my left leg. My left leg has been swollen, along with the foot. When my feet swell, they hurt. I do not know why my left foot and leg is swollen.
This Friday, I am going to get a PET/CT scan to check on my lymph nodes.
This Wednesday afternoon, I will be getting an ultrasound on my left leg. My left leg has been swollen, along with the foot. When my feet swell, they hurt. I do not know why my left foot and leg is swollen.
This Friday, I am going to get a PET/CT scan to check on my lymph nodes.
Thursday, December 26, 2013
At the Doctor's Office Again
I said that I had blood drawn on the 10th of this month. Doctor's office called on Tuesday, to say they got the results and that the doctor wanted to see me. So I scheduled the appointment for 10:50 this morning. I waited about 50 minutes in the waiting room before being called back. I gained about 2.5 pounds since the 2nd of this month. I have been watching my portion sizes for when I eat. I wanted to prove to my lung doctor that I wouldn't gain a lot of weight while on steroids. My face is very puffy!
Back on the 10th, blood was drawn to check my blood sugar and insulin levels. I was told that steroids can mess up your sugar levels. Mine is a little high. 6.3 is diabetic, mine is 6.5. My doctor is not saying that I am diabetic. On the 10th, I was taking 2 steroids a day, I am now down to 1 1/2 steroids a day. Each pill is 20 mg. The first month was 60 mg a day, the second month was 40 mg a day, and now I am down to 30 mg,
This is what we are going to do: I was going to have my physical fasting blood work done on January 17, but it is being moved back to February 14. I am already scheduled for blood work on that day for the kidney doctor. Plus, my blood sugar will be tested on February 14 also. According to my calculations, my last day to take steroids is January 20. That will put me at 3 weeks without being on steroids, so hopefully, things will have settled down by then.
While I was at the doctor's office, I told her that my right leg was hurting. I somehow did bruise an area on the front, but it hurt on the side for the past couple of days. Since it felt warm to the touch to her, she wanted to get an ultrasound done on my leg. That is the third one this year since July. I had to head down to Green for a 3:30 appointment, since the places around where I live couldn't get me in for a stat ultrasound. I do not have a blood clot in my right leg. The area hurts and is kinda hard. I will put the heating pad on it, and since I see the chiropractor on Saturday, I will ask him to do heat therapy on that area. He is good at letting me have the heat therapy when I ask for it.
Back on the 10th, blood was drawn to check my blood sugar and insulin levels. I was told that steroids can mess up your sugar levels. Mine is a little high. 6.3 is diabetic, mine is 6.5. My doctor is not saying that I am diabetic. On the 10th, I was taking 2 steroids a day, I am now down to 1 1/2 steroids a day. Each pill is 20 mg. The first month was 60 mg a day, the second month was 40 mg a day, and now I am down to 30 mg,
This is what we are going to do: I was going to have my physical fasting blood work done on January 17, but it is being moved back to February 14. I am already scheduled for blood work on that day for the kidney doctor. Plus, my blood sugar will be tested on February 14 also. According to my calculations, my last day to take steroids is January 20. That will put me at 3 weeks without being on steroids, so hopefully, things will have settled down by then.
While I was at the doctor's office, I told her that my right leg was hurting. I somehow did bruise an area on the front, but it hurt on the side for the past couple of days. Since it felt warm to the touch to her, she wanted to get an ultrasound done on my leg. That is the third one this year since July. I had to head down to Green for a 3:30 appointment, since the places around where I live couldn't get me in for a stat ultrasound. I do not have a blood clot in my right leg. The area hurts and is kinda hard. I will put the heating pad on it, and since I see the chiropractor on Saturday, I will ask him to do heat therapy on that area. He is good at letting me have the heat therapy when I ask for it.
Monday, December 02, 2013
I Saw my PCP Today
I saw my personal doctor first this morning at 8:40 am. I was there over an hour. I went in to see her because of having no energy and no energy in my leg muscles. As I have posted before, I started steroids on Wednesday, October 23, with three a day. By that Friday, I noticed how much energy I had. That energy lasted about two weeks.
The week of November 4, I started to notice how difficult it was to go up the two short flight of stairs at school, and the stairs at home at night to go to bed. That Thursday night, is when I first noticed the rash on my legs, and had thought that I was having an allergic reaction. Of which I wasn't.
The next week, it wasn't too bad. The week of the 18th, rash was bad, the energy was horrible, half a sleep when I wen to school, polar pop every day, half a sleep, when I left school. That Thursday, my right leg was hurting by the top part of my hole, and it was hard. I went to the ER Friday night, and left with a prescription for pain pills. That was 22nd, and we found out that mom had mono.
By Thanksgiving, I was wondering if I had caught mono from mom. So I called on Wednesday or Tuesday to see my doctor today. My face is already very swollen from the steroids (I now take only two a day). Areas around my neck are swollen, either due to the steroids or my lymph nodes are swollen. I asked to be tested for mono.
The nurse was able to get blood from my left hand, it flowed slowly, but she was able to get enough for the different tests they wanted to run. The did the quick mono blood test, which came back negative for mono. But the rest was sent out to the lab and will be tested for mono.
Having sarcoid, and being on steroids, makes it difficult to know what is going on with my body. I am still dehydrated, and do not drink enough water. I drink pop for the caffeine kick I need to have energy to do things.
Between Thanksgiving through yesterday, I took naps on three of the four days. Friday's nap was 2 1/2 hours long. I usually only nap when I am sick. I've been resting, but still need more. I would like to know what is going on with my body. I would like to feel better soon.
The week of November 4, I started to notice how difficult it was to go up the two short flight of stairs at school, and the stairs at home at night to go to bed. That Thursday night, is when I first noticed the rash on my legs, and had thought that I was having an allergic reaction. Of which I wasn't.
The next week, it wasn't too bad. The week of the 18th, rash was bad, the energy was horrible, half a sleep when I wen to school, polar pop every day, half a sleep, when I left school. That Thursday, my right leg was hurting by the top part of my hole, and it was hard. I went to the ER Friday night, and left with a prescription for pain pills. That was 22nd, and we found out that mom had mono.
By Thanksgiving, I was wondering if I had caught mono from mom. So I called on Wednesday or Tuesday to see my doctor today. My face is already very swollen from the steroids (I now take only two a day). Areas around my neck are swollen, either due to the steroids or my lymph nodes are swollen. I asked to be tested for mono.
The nurse was able to get blood from my left hand, it flowed slowly, but she was able to get enough for the different tests they wanted to run. The did the quick mono blood test, which came back negative for mono. But the rest was sent out to the lab and will be tested for mono.
Having sarcoid, and being on steroids, makes it difficult to know what is going on with my body. I am still dehydrated, and do not drink enough water. I drink pop for the caffeine kick I need to have energy to do things.
Between Thanksgiving through yesterday, I took naps on three of the four days. Friday's nap was 2 1/2 hours long. I usually only nap when I am sick. I've been resting, but still need more. I would like to know what is going on with my body. I would like to feel better soon.
Tuesday, November 26, 2013
Today's Doctors' Visits
I took the day off from school for three different doctor/dentist visits that I had scheduled for today.
The first one was at 10 am with my kidney doctor. I got the blood and urine tests results that were done October 18 and 20th. All of the levels have gone down. My creantin level is still just slightly over 2, my calcium is now in the normal range. I have been diagnosed with Kidney Sarcoid. There has been damage done to my kidneys. We do not know if the damage will reverse itself, or what. If the steroids I am on, do its job, then hopefully, the damage won't be too bad. If I do or do not go off of steroids in two months, then I have to let my kidney doctor know. If I do go off of them, then I will have blood work done in the middle of February to see what my different levels are. As of now, I am scheduled to see him again on February 26. If I am able to have the blood work done, and my levels have not gone down some more, or they have gone up, then I will have to have a kidney biopsy to see what type of damage has been done to my kidneys. I have not been drinking a lot of water lately, because of being so tired, that I get a polar pop in the morning, to give me a kick of caffeine. I have had no energy in the past week. I have only gained 4 pounds in the last 5 weeks. That is pretty good, for being on steroids. The side effects are not fun.
My next appointment was with the dentist at 1 pm. I was supposed to have molds made of my teeth so that I could have a night guard made. I've been clutching and grinding my teeth at night. My face has become very swollen in the past two weeks. The lady who was going to do the molds, could barely get the top one into my mouth, but she did. She put a bit of the plaster mixture on the top of my mouth, and I had a major gagging fit and started to throw it up. We could not get the molds made today. I will have to wait until the spring, when I am off of steroids and the swelling in my face has gone down.
My last appointment was for 2 pm at the dermatologist. I actually saw the physician's assistant. I wanted to know if the rash that was on my legs was exczema that had spread from where I get it around my mouth down to my legs. The exzcema has spread. I was given a prescription for topical steroids to put on my legs twice a day for two weeks. Giant Eagle pharmacy did not have it in, so I have to go back tomorrow to get it. I was taking to the PA about the weakness in my legs I have been experiencing over the past three weeks. She told me to call my personal doctor. I will be seeing her on Monday, December 2 at 8:40 am. It can be very difficult to walk, go up a few steps, and even get into and out of my car, because I have no energy in my legs.
I fell yesterday morning in my classroom, I was walking behind two of my students and just went down. They were seated at the table, I had just started going around, stapling a 1/4 sheet of paper into their planners, when I fell. I have a bruise on the left side of my left leg. I think I bruised my right leg, because it hurts, and there isn't really a bruise that has popped out on my leg. My right leg does hurt.
The first one was at 10 am with my kidney doctor. I got the blood and urine tests results that were done October 18 and 20th. All of the levels have gone down. My creantin level is still just slightly over 2, my calcium is now in the normal range. I have been diagnosed with Kidney Sarcoid. There has been damage done to my kidneys. We do not know if the damage will reverse itself, or what. If the steroids I am on, do its job, then hopefully, the damage won't be too bad. If I do or do not go off of steroids in two months, then I have to let my kidney doctor know. If I do go off of them, then I will have blood work done in the middle of February to see what my different levels are. As of now, I am scheduled to see him again on February 26. If I am able to have the blood work done, and my levels have not gone down some more, or they have gone up, then I will have to have a kidney biopsy to see what type of damage has been done to my kidneys. I have not been drinking a lot of water lately, because of being so tired, that I get a polar pop in the morning, to give me a kick of caffeine. I have had no energy in the past week. I have only gained 4 pounds in the last 5 weeks. That is pretty good, for being on steroids. The side effects are not fun.
My next appointment was with the dentist at 1 pm. I was supposed to have molds made of my teeth so that I could have a night guard made. I've been clutching and grinding my teeth at night. My face has become very swollen in the past two weeks. The lady who was going to do the molds, could barely get the top one into my mouth, but she did. She put a bit of the plaster mixture on the top of my mouth, and I had a major gagging fit and started to throw it up. We could not get the molds made today. I will have to wait until the spring, when I am off of steroids and the swelling in my face has gone down.
My last appointment was for 2 pm at the dermatologist. I actually saw the physician's assistant. I wanted to know if the rash that was on my legs was exczema that had spread from where I get it around my mouth down to my legs. The exzcema has spread. I was given a prescription for topical steroids to put on my legs twice a day for two weeks. Giant Eagle pharmacy did not have it in, so I have to go back tomorrow to get it. I was taking to the PA about the weakness in my legs I have been experiencing over the past three weeks. She told me to call my personal doctor. I will be seeing her on Monday, December 2 at 8:40 am. It can be very difficult to walk, go up a few steps, and even get into and out of my car, because I have no energy in my legs.
I fell yesterday morning in my classroom, I was walking behind two of my students and just went down. They were seated at the table, I had just started going around, stapling a 1/4 sheet of paper into their planners, when I fell. I have a bruise on the left side of my left leg. I think I bruised my right leg, because it hurts, and there isn't really a bruise that has popped out on my leg. My right leg does hurt.
Thursday, October 17, 2013
Saw the Kidney Doctor
I had an appointment with the kidney doctor today. My oncologists office set it up, and told me the appointment was for 10:30 am. I took the day off from school. I get there, and was told my appointment was for 2:30 pm. That made me mad, since I had training from 4-6 pm.
I went back this afternoon. I had blood drawn on Tuesday, and he hadn't received those results yet. I do not know what my cretin level is currently. Even back in June, it was slightly elevated. My calcium level is high, over 12. There is two kinds of vitamin D in your body, so he thinks the one kind will be high. I am going to have blood drawn tomorrow morning and will have a lot of things tested. The theory is that my sarcoid is messing with my kidneys. I am still dehydrated. As of now, I will see him again the week of Thanksgiving. He is going to talk to my oncologist and my lung doctor.
I went back this afternoon. I had blood drawn on Tuesday, and he hadn't received those results yet. I do not know what my cretin level is currently. Even back in June, it was slightly elevated. My calcium level is high, over 12. There is two kinds of vitamin D in your body, so he thinks the one kind will be high. I am going to have blood drawn tomorrow morning and will have a lot of things tested. The theory is that my sarcoid is messing with my kidneys. I am still dehydrated. As of now, I will see him again the week of Thanksgiving. He is going to talk to my oncologist and my lung doctor.
Friday, October 04, 2013
God Thing
My last post, I talked about how I haven't been feeling well, and it has been three weeks of this. I saw my oncologist this morning, and I can say I was actually looking forward to seeing him. The appointment got moved up from the 29th to this morning. I explained everything that was going on. I had blood work done. My vein was accessed for drawing blood. White blood count was 5.1, normal. Platelets okay, and my red blood count was down to 3.6, making me anemic. My doctor made a comment that maybe I am now suffering from migraines. He said to drink a bit of caffeine when I get a headache. I have a headache most of the time. He did request a ct scan of my head/brain.
I go see the scheduler, she said it could be up to three weeks for the CT scan. I asked if by chance there was an opening today. She called, and City Hospital happened to have one this afternoon. That is so God. I am so glad it was at City Hospital. I was told to drink a lot of water, and that I could have lunch. My appointment was for 2 pm.
No issue accessing my vein this morning. The nurse tried my arm, and boy did it hurt, she flushed the vein, and I complained of the pain. She flushed it a second time, then the vein blew. That area of my arm hurt. I was not willing to try another vein, so they called for a nurse and she accessed my port. I had the scan, then came home. I ended up taking the whole day off from school.
Getting an appointment today at City was a good thing. City hospital is the only place that will access my port for scans that require contrast.
I will get the results next week, when I call my oncologist's office. My doctors are not sure what is wrong. I hope I can find out soon, so I can start to feel better. Maybe then, I will start to sleep better.
I go see the scheduler, she said it could be up to three weeks for the CT scan. I asked if by chance there was an opening today. She called, and City Hospital happened to have one this afternoon. That is so God. I am so glad it was at City Hospital. I was told to drink a lot of water, and that I could have lunch. My appointment was for 2 pm.
No issue accessing my vein this morning. The nurse tried my arm, and boy did it hurt, she flushed the vein, and I complained of the pain. She flushed it a second time, then the vein blew. That area of my arm hurt. I was not willing to try another vein, so they called for a nurse and she accessed my port. I had the scan, then came home. I ended up taking the whole day off from school.
Getting an appointment today at City was a good thing. City hospital is the only place that will access my port for scans that require contrast.
I will get the results next week, when I call my oncologist's office. My doctors are not sure what is wrong. I hope I can find out soon, so I can start to feel better. Maybe then, I will start to sleep better.
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