Saw the Kidney Doctor

  I had an appointment with the kidney doctor today.  My oncologists office set it up, and told me the appointment was for 10:30 am.  I took the day off from school.  I get there, and was told my appointment was for 2:30 pm.  That made me mad, since I had training from 4-6 pm.

  I went back this afternoon.  I had blood drawn on Tuesday, and he hadn't received those results yet.  I do not know what my cretin level is currently.  Even back in June, it was slightly elevated.  My calcium level is high, over 12.  There is two kinds of vitamin D in your body, so he thinks the one kind will be high.  I am going to  have blood drawn tomorrow morning and will have a lot of things tested.  The theory is that my sarcoid is messing with my kidneys.  I am still dehydrated.  As of now, I will see him again the week of Thanksgiving.  He is going to talk to my oncologist and my lung doctor.

Friday's Update

 My weight is the same as yesterday's.  Labs were drawn and they were looking at two different things.  One was good, and my cretin level went up from 2.25 to 2.26.  I ended up getting two bags of fluid this afternoon, that makes a total of eight bags of fluid this week.  As soon as the second bag was done, boom, I became really tired.  I am cold.

I will have labs done again Tuesday afternoon.  I will see the kidney doctor next Thursday at 10:30 am.

Kidney Problems

    Monday afternoon, I received three voice mails from my oncologist's office.  My cretin level was 3.9 Friday morning.  My oncologist thought the blue dye from the CT scan caused this issue with my kidneys.  They wanted me to receive fluids.
   Yesterday, I was scheduled to have my port flushed and blood drawn to test my ACE levels (sarcoid). My cretin levels were 3.1. I received two bags of fluid.  I was told that I had to get an ultrasound of my kidneys.  I had that done at 1 pm today, then went back over to the cancer center to received two more bags of fluid. 
   Now my cretin levels are 2.9. I have to go back to the cancer center tomorrow for two more bags of  fluids.  They are getting me in, so that I can still keep my dentist appointment at 4 pm.
  The highlight of my day was seeing my two favorite nurses.
    Still having headaches, stomach ache, and feeling a bit nausea. 
  Nobody knows what is going on with my kidneys and what has caused this.