I saw the surgeon and my oncologist this morning and this afternoon. I like the surgeon. He showed me pictures of the scans of my lungs and had copies made for me. He showed me where the nodules were and where the lymph nodes are that have swelled up. The lymph nodes are around my windpipe. The nodules are either Melanoma or scar tissue (Granulomars) which is Sarcoid. Sarcoid causes the nodules, lymph nodes to swell, and the spleen to get bigger. Sarcoid is treatable. I was told back in the summer of 2007, that I had Sarcoid. One syptom is a cough, which I have basically had off and on since I was a kid. I had blood drawn this afternoon via a vein, so it could be tested for Sarcoid. This test is not the best test, but it is used. I have not had the bronchial scope done, even though my lung doctor has talked about it before. He is going to be brought up to speed by both the surgeon and my oncologist.
I am waiting to hear back from the surgeon's office, but as of now, I will be having surgery next Friday, March 8. It is a short, out patient procedure. A small slit is made just above my breast bone, and a camera is sent down, and he will remove some lymph nodes and they will be tested. As of now, I am scheduled to see my oncologist on Monday, March 18 at 8:30 am. The sooner this is done the better for me.
I now just have to tell my parents tomorrow night after I pick them up from the airport.
My thoughts on life in remission for skin cancer and teaching full-time, or just life in general.
Showing posts with label granuloma disease. Show all posts
Showing posts with label granuloma disease. Show all posts
Friday, March 01, 2013
Wednesday, February 27, 2013
Been thinking...
From what has been going on this month, I was thinking last night. Back in December, mom and I had been talking about Obama Care and how it could affect Timmy. At some point, it would come that the hospital would say that we can not care for him. They basically wouldn't be allowed to. The main reason would be that he is handicapped. So for him dying now is a blessing in disguise that we do not have to go through.
From what I read about Granulomar Disease, is eczema being active. I have been having issues with mine since late summer. I have been complaining about it, and have started thinking in the last few months, that maybe I had become allergic to tomato products. It seems that my eczema would bother me when I ate pizza, spaghetti, chips and salsa, lasagna. My eczema is the corners of my mouth.
From what I read about Granulomar Disease, is eczema being active. I have been having issues with mine since late summer. I have been complaining about it, and have started thinking in the last few months, that maybe I had become allergic to tomato products. It seems that my eczema would bother me when I ate pizza, spaghetti, chips and salsa, lasagna. My eczema is the corners of my mouth.
Monday, February 18, 2013
I think this is scare #6
So far, February has been a rough month, and March will also be rough. Last Friday (2/15) I had my CT scan with contrast. I saw my oncologist this morning for the results. As the title says, another scare that my cancer is back. What did the scan say? Lymph nodes a little worse and they are not easily accessible; small nodules in both lungs 2-7 mm in size and too small to be biopsied, and my spleen is 2 cm bigger. My blood word I had done on the 5th cam back good. I found out today that I was diagnosed with granuloma disease two years ago. Go to the following website to find out more information about granuloma disease: http://www.nlm.nih.gov/medlineplus/ency/article/001239.htm. From reading this, I think my brother also had granuloma disease. According to the website, it is an inherited disease, so both of my parents are carriers.
Next Monday (2/25) I will have a Pet/CT scan. That Friday (3/1) I will be seeing a new doctor, a Cardiothoracic surgeon in the morning and see my oncologist early that afternoon. I googled the surgeon, and from what I read, he is to be a top notch surgeon/doctor.
Depending on what the PET/CT scan says will determine the next steps. Biopsy? Surgery?
It seems like every year, I have a scare of some kind. I am tired of having a scare every year. When can I go a year without scares?
Father,
I know you know what you are doing? You have plans to prosper me, not to harm me. Please give me the strength to get through this. I also what you to be glorified during this time. Please use me in whatever way you deem. Your will be done on Earth as it is in Heaven. I am not happy. This on top of Timmy's death, and the stress of the school year seems to be too much bear.
Amen
Next Monday (2/25) I will have a Pet/CT scan. That Friday (3/1) I will be seeing a new doctor, a Cardiothoracic surgeon in the morning and see my oncologist early that afternoon. I googled the surgeon, and from what I read, he is to be a top notch surgeon/doctor.
Depending on what the PET/CT scan says will determine the next steps. Biopsy? Surgery?
It seems like every year, I have a scare of some kind. I am tired of having a scare every year. When can I go a year without scares?
Father,
I know you know what you are doing? You have plans to prosper me, not to harm me. Please give me the strength to get through this. I also what you to be glorified during this time. Please use me in whatever way you deem. Your will be done on Earth as it is in Heaven. I am not happy. This on top of Timmy's death, and the stress of the school year seems to be too much bear.
Amen
Labels:
cancer,
CT Scan,
ct scan results,
granuloma disease,
lymph nodes,
nodules,
oncologist,
PET Scan
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